Non-Smoker Lung Cancer: A Growing Epidemic

When I was a kid, I was well aware of the dangers of cigarette smoking, and the relationship between smoking and lung cancer. However, when Dana Reeve was diagnosed and then died from lung cancer in 2006 at just 44 years of age, I became aware that non-smoker lung cancer also cast a dark shadow, that over the past decade has only grown larger.

Every 2 1/2 minutes someone is getting diagnosed with lung cancer. And people are getting lung cancer diagnoses at increasingly younger ages. People who are under 45 or 50 are more commonly diagnosed than in the past, and younger people tend to have more advanced lung cancer at the time of diagnosis than older patients. A great number of younger patients, like my dear college friend Art, are diagnosed with stage 4 disease.

Here are some statistics that Hildy Grossman, the founder of UpStage Lung Cancer, shared with me:

* an estimated 224,210 people were expected to be diagnosed with lung cancer in 2014, and 159,260 were expected to die

* 13.4% of these people are under age 50, and 1.2 - 6.2% are under age 40

* this translates into 30,000 people under age 50 being diagnosed with lung cancer in 2014 and 21,000 young adults dying from the disease

* to put this in perspective, it was estimated that 40,000 people would die of breast cancer in 2014, and 20.8% of these women are under age 54--8300 women under ager 54 will die from breast cancer

* for younger adults, under age 45 - 50, lung cancer is the #1 cancer killer

* younger people tend to have more advanced lung cancer at the time of diagnosis than older patients; a greater number of younger patients are diagnosed with stage 4 lung cancer

* younger people with lung cancer are more likely to have never been smokers than people who develop lung cancer later in life

* people diagnosed with lung cancer at a younger age are more likely to have family members who have suffered from the disease

* the stigma is high for younger people who are diagnosed with lung cancer--they are often blamed for their illness and often need even more support than people diagnosed at an older age, even though the stigma is high for anyone diagnosed with lung cancer

* the American Cancer Society estimates that there are 400,000 people in the US living with lung cancer, and about 8000 are under age 45

* nearly 80% of new lung cancer patients are former or never smokers

* lung cancer takes more lives than breast, prostate and colon cancers combined

* the five year survival rate for lung cancer has changed little in more than 40 years

These statistics make it clear that we need to be informed about the prevalence of lung cancer, including non-smoker lung cancer in younger adults under age 45 - 50, and that encouraging people to be screened for lung cancer is as important as being screened for breast cancer and colon cancer. Research is needed to help us understand WHY so many non-smokers are developing lung cancer, and what preventive measures we can take to protect ourselves from getting the disease.

How Music Builds Community

One of my delightful musical colleagues, Dale LePage often says something I believe to be true, "music is magic." I have felt its magic since I was very young, both for the way music lives inside of me, and for the way it touches others and brings people together in a deep, tangible way, often much deeper than words can express.

When I have led weekend retreats or extended personal growth workshops, I have always brought along a wide variety of music, knowing that moments might arise where a particular song or piece of music might capture or frame the moment, or be exactly what someone needs to hear to heal or open their heart.

One thing that struck me as I played the song that captured the moment was that not only did the person who was doing the healing turn benefit from the music, but also so did all the other people in the group and in the room. A song that captured the moment also captured and connected the hearts of all the people sharing the moment.

I have had the same experience both as a singer performing and as an audience member taking in live music. Through putting together a program, and choosing the songs, reflections to share in between songs, and even the instruments for a particular arrangement of a song, I feel like I am working in a special medium--like an artist working with clay that can be sculpted into all kinds of emotional possibility.

As I share a song, the subtext, the story and the feeling of the song translate well beyond the words. My heart can share time and space with the energy of other people's hearts. Whether on the giving or receiving end of this musical heart energy, I can feel people coming together as community in a listening room.

Here are some of the ways music builds community:

Music speaks to the common ground of our human experience

The themes and stories one finds in songs cover the full emotional gamut of the human experience: love found, love lost, hopes and dreams, relationships with children, parents, friends and lovers, nature, the world around us, special places, special moments, and how each of these makes us feel. We can all agree "What the world needs now is love."

Music is a universal language

While there are many styles of music, some unique to individual cultures, that most all cultures have music is universal. We don't need to be from one culture to be moved by the sounds of another culture's music. There is something about music itself that reaches beyond words. And words too may be part of the spirit and emotion expressed through a song or other piece of music.

Music has a vibration that resonates with our bodies and hearts

We are electromagnetic energy beings. Our bodies feel vibrations and can attune or align with them. Different pitches resonate with different energy centers in the body. And different qualities of sound touch us in different ways. We are touched at the vibrational level as well as the emotional level.

Music allows us to join our voices and hearts

When people play or sing together, there is a communion or joining of hearts and spirits through shared playing or singing. If we sing in harmony with others, we feel our place within the harmony and we hear and feel the different sounds above and below ours. In this sense we become part of a musical fabric, one that connects and expresses our hearts and soul.

Shared music becomes its own common language

Whether a television show has a theme song, a country has a national anthem or a high school reunion DJ plays songs from the years everyone was in school together, hearing this music is a common language that is recognizable, evokes memories and images, and holds shared experience. Songs represent social movements, like "We shall overcome." They represent a coming together in good times or tough times, like "We are the world."

Music can be created or experienced alone or with others, but its power to bring us together or feel connected carries through however we experience it! Music really can bridge most all divides and strengthen most any connection.

Music As Medicine

Two central passions have always moved through my life: music and heart-centered healing. Early in my life, the two passions seemed to be separate and hard to combine. And in order to make a living, I had to focus on one, without much room for the other. Mind-body medicine seemed easier for me to carve a niche in than music, since people seemed to naturally gravitate towards the heart-centered work I developed, and my ideas were welcome and valued at professional conferences and in professional forums. As a 20 year old singer/songwriter, radio dj's loved my songs, but in a world that liked to put musicians in genre boxes, I did not neatly fit in any one box. (I still don't!)

Over time, however, my musical passion kept bubbling up, demanding my attention. And I realized how much music was not only a deep sense of expression and connection, but also a healing force. In fact, when I led personal growth workshops, I always brought along an eclectic collection of songs that touched many facets of the heart. Sure enough, moments would arise when a very specific song would be just right for the healing work a person was doing at that moment. And I would find myself joyful and grateful I had followed my intuition in bringing that very song along. Sometimes I would find myself playing the piano and singing one of my own songs in one of those special healing moments. And sometimes I would invite the whole group to sing together to co-create a healing moment. I became aware, whether in an intentional healing context or not, music itself was medicine.

I know that songwriting has given me a voice for some of the deepest felt experiences that words could not express. And that songs written from that soul-deep place touch the hearts and souls of others. There is a power in the energy and spirit conveyed not just by a singer, but by the words and music of a song. Giving voice to some of the most difficult moments has allowed movement and healing to take place for me. And I have received feedback from listeners that they too have felt movement and healing as their hearts have opened and been touched. Likewise, joy can be shared through music, and when listening to music with others in a live performance venue, the joy multiplies through the communion of our collective hearts.

This reminds me of a comment a cardiologist colleague of mine made many years ago when we both taught at a behavioral medicine conference. While sharing his thoughts about what healing really does take place during open heart surgery, he reflected, "I don't think it is the cutting open of the chest or the technical procedures we perform that allow healing nearly so much as the act of physically holding someone's heart in your hands, literally 'touching the heart.' For many of my patients, whose hearts are well-defended, it takes the act of pulling back the ribs to actually touch the heart. Might it be the intention and energy of my heart conveyed through my hands that allow the healing process to take place?" That reflection always stayed with me: we heal when our hearts are touched. And music is a powerful force that magically and poignantly reaches all the way in and touches the heart.

I was talking with a friend and fellow musician about "music as medicine," a few weeks back, and he shared an extremely touching story from a gig he had just played with Alzheimers' patients. When his trio arrived, the effects of Alzheimers' were very sadly present. The patients stared down at the floor. They did not talk much or interact. As my friend and his trio started to play, the patients began to respond. They became more alert. They became more alive. And then as my friend and his fellow musicians began to sing songs dating back to when these older people were young, the room started to echo with many voices singing along. What a miracle that familiar music could literally transform a group of advanced Alzheimers' patients to a joyful and alive state of being! Stories like this make it clear that music can reach deeply into the soul and evoke a part of our core humanity, even in apparently dire situations.

I have always loved creating musical benefit concerts both to give visibility to organizations doing important work, and to create a magical, healing community environment, where all are touched because of the music that is shared. I am delighted to be supporting Hildy Grossman and her UpStage Lung Cancer organization in producing "Singout! For Cancer: Music As Medicine," a musical evening designed to raise money for this important non-profit's work to raise awareness of lung cancer, and to encourage screening, prevention and research. Last month I wrote about my very special college friend, Art Olivas, who very sadly is suffering the end effects of metastatic lung cancer. Art, like far too many people diagnosed with lung cancer these days, is a lifelong non-smoker. In the face of such large and catastrophic illnesses like cancer, there is healing in taking whatever action can be taken to try to help other people. And feelings of love, grief, anger, overwhelm, hope and desire to make a difference become a well that fuels music to heal and transform. No wonder so many messages are best shared through song. "What the World Needs Now Is Love Sweet Love." "We Are the World."

Music is medicine and it is available to all of us without insurance snafus or medication side effects. And its healing power is vast and timeless.

Living As A Friend Is Consciously Dying

"Why oh lord do we feel abandoned when we are in pain? Are you not present in the form of our family and friends who tend to us and offer us comfort? Is their love not enough? What more do we desire, need? We desire an end to our suffering and yet it persists and even the most tender care can not take away the presence of profound pain in our minds and bodies. Modern medicine can help but it too begins to fail. What then do we do? Is it at this point of failure that our true mettle is challenged, revealed? And what if we are found wanting, weak, even when we have been encouraged to "be strong"? What is this suffering , then? A Greek race of endurance? The strong win the race and demonstrate a superior character than those of us who stumble, fall, and cry and no longer desire to stand and run again....Or is there compassion for those who can not be strong, for those who do not "suffer" well or virtuously. Is God present even to those of us who can no longer bear it anymore, or at least think we can't." --Arturo Olivas

I have a very special friend from college who I fondly knew as Art. He bravely faced some challenges in college, and I was peripherally aware of them. He went on to become an extraordinary educator, a talented artist--a santero, a painter of santos, religious images in a Southwestern Spanish tradition, and at age 50, a secular Franciscan brother.

Art, who I now know as Arturo, was always thoughtful and sensitive. Just over four years ago, he was diagnosed with stage four lung cancer, and a profound journey began for Arturo and his partner of 30 years, Chris. Arturo, like too many people who get lung cancer, was not a smoker. So, his diagnosis came as a total surprise, when he went to urgent care for chronic bronchitis. He was given 6 months to live.

Only a very small percentage of people with Arturo's diagnosis live as long as he has lived. While it is overwhelming, to say the least, to receive a stage four cancer diagnosis, and an act of courage and strength to live through all the treatments and surgeries and tests that follow, the way Arturo has lived with cancer, and beyond cancer, is a testament to the depth and strength of his spirit.

I have rarely met anyone as sensitive, humble, eloquent, caring and creative as Arturo. His art is highly regarded, and exhibited in museums and galleries in Albuquerque, where he lives. His care for young people as an educator emanates from his spirit. And just this month, a long campaign he spearheaded, to have a banner addressing lung cancer hung along the University of New Mexico Medical Center pedestrian bridge, encouraging early detection, has finally succeeded! For someone who lives with profound pain, and the fear and mystery of death as a closer companion than most of us, his energy and creativity are beyond inspirational.

Arturo is a gifted writer, and because he has been generous enough to share vignettes from his journey on Facebook, I have had the opportunity to be touched by his thoughts, feelings and words, almost as though he is giving me the chance to accompany him on his very personal journey.

One can say that it is true that because life as we live it each day is a temporary gift,as we live, each of us is also dying. For most of us, however, we have no idea how long the gift of life will be extended to us, and little inkling of when our final days will arrive. When someone is given a terminal diagnosis, like Arturo was four years ago, the reality that life is finite becomes much more present. By virtue of facing life and death each day, Arturo is not only consciously dying, but more importantly, consciously living. The compassion and authenticity with which he lives is incredibly touching to me and many others who know him.

The following are a small sample of his reflections:

"The greatest thing we can do for those who are in pain is to hold their hand...just hold their hand."

"Severe physical and emotional pain challenges all the things we cling to most in this life: our faith, our trust, our relationships. if the pain doesn't completely destroy all of these, then perhaps we have a chance to endure for a while longer and eventually, die in peace....."

"I have never intended to be strong in the wake of cancer..I am weak and vulnerable and subject to pain...some people do not want to hear that, especially from a man....I understand that, but it is not "me". perhaps I am more like my mother than I realize in the sense that when asked how she felt, she told it like it was - "I feel sick!"....It taught me to listen to the litany of complaints and not to try to make her say something that she did not feel. Of course I would have wanted to hear mom say, "Oh, today I feel great!" - that would have been a great comfort to me. But ultimately the question was about the patient and not about making the person asking the question feel good."

As I read Arturo's reflections over time, I found myself deeply called to go visit him before it was too late. I am very grateful that the week before Thanksgiving, I flew out to Albuquerque to visit even briefly with my special friend. Our time together was beautiful and poignant, so characteristic of Arturo.

"A key moment in the life of a "terminally" ill cancer patient, and for all living beings , is the moment we decide to stop living in anticipation of death and we begin to live now, in the present, in gratitude for the life we have....we know we have made this decision when we make plans to be engaged in the lives of others....and not just plan, but do!"

These are words that very accurately portray Arturo's full engagement with life. He is living more fully than almost anyone I have ever met. Though his cancer metastasized to his brain and spine, and the very day he and I were to get together he wrote to me concerned that he might have bronchitis again, and might be coughing, though he very much wanted to get together, his spirit seems to be so much stronger than the disease process he is living with.

I know that life is finite, and there will come a day when Arturo's spirit moves on to the other side. But I have to believe a part of him will always be here on the side of the living, a side he has embraced with passion, gusto and love. And when his spirit rises, a magical rainbow of love will provide a bridge of connection for all of us who have known him.

Bridging the Gap Within: A Key to Connection

"I love you just the way you are, there's nothing you need to do. When I feel the love inside myself, it's easy to love you." --From "I Love Myself the Way I Am" by Jai Josefs

A client of mine recently shared with me a reading from a book that pointed out that the greatest cause of pain in relationship is disconnection. When we open our hearts to intimacy, we seek to stand in a space of connection. What we often don't realize, however, is that in order to stand in a space of connection with another person, we need to first stand in a space of connection with self.

If we look inside and find a disconnect in our relationship with self, we may unearth the root of an experience of disconnection with a loved one. Bridging the gap within through exploring what prevents us from being fully connected to self is the foundation for creating space for sustained connection with another person.

Our culture teaches us to look outward to others to make us happy, to take care of us, and often to define ourselves in relationship to them. There is a place for this in moderation, but if we don't first learn what makes us happy, learn how to take care of ourselves, and define ourselves on our own terms, it is hard to be fully present, happy and grounded in our relationships. When things get messy or go awry, we are quick to blame rather than point the finger internally and ask what we are contributing to the mess.

Relationships are a system. There is my relationship with myself, your relationship with yourself, and the "we" which is a living entity, like an oversoul, that both you and I are responsible for cultivating. If any one of these three parts is not fully attended to, a sense of disconnection, and often pain, can result. If we are not aware of the three players in the system, it is hard to identify where a sense of disconnection originates. If we have an internal gap within ourself, then it is hard to sustain the connection with you or the "we."

How do we learn to bridge the gap within? Here are some important practices:

1. Learn to develop an introspective practice. Meditate. Journal. Draw. A practice that encourages you to dig deeper into your senses, thoughts and feelings, allows you to become more aware of your inner experience and connect more deeply with yourself.

2. Make time for introspective work daily. Introspection is part of self-care. And if you develop a daily introspective practice, you are making space for your deeper self. Just as asking a partner "how was your day?" builds relational connection, asking yourself, "how am I feeling today?" builds connection with self.

3. Slow down and look within as you go through your day. If you find yourself moving through your day with a fast pace, it is valuable to slow down and look within. If we go too fast, we may factor self out of the equation as we do for others and focus on what needs to be done.

4. Become more familiar with your internal landscape and create space to presence and experience whatever you are thinking and feeling. Being able to just "be with" whatever we are sensing, thinking and feeling without judgment, helps us "be" with ourselves. This creates more internal space, which then gives us more space to be present with others.

5. Remove judgment of your internal experience. We may not like feeling scared, sad, vulnerable or angry, but all of these feelings are perfectly human. For us to be whole, it is important to embrace of just "be with" whatever we are sensing, thinking or feeling without judgment. Being able to be scared, sad, vulnerable or angry allows us to embrace more of our full humanness, and have space to embrace these qualities in others. 6. Become more conscious of when you feel connected to yourself and when you feel disconnected. When you feel connected, how does your body feel? What do you feel in your heart? What are your thoughts like? When you feel disconnected what do you notice in your body, thoughts and heart?

7. Learn how it feels when you are spacious and grounded. If you are aware of how you feel when you are spacious and grounded, it is easier to notice when you are not. Learn what helps you stay spacious and grounded, and what distracts you.

As you develop your interior landscape, and experience more spaciousness and grounding, you will feel more connection and wholeness within. And this internal spaciousness and connection will help you experience and sustain connection with others you care about.

Finding Your True Voice

We live in a culture that teaches us to be quiet and not speak up from an early age. Children are taught to "be seen but not heard." When a parent or teacher feels a child is taking up too much space, they are often told to be quiet or more crudely, to "shut up." These kinds of messages stifle our hearts and souls and keep us from growing and evolving into a true, purposeful and happy self.

In reality, not only do we need to find our voice to fully express and connect with self and others, but also others need to hear what we have to say to connect with self and others as well.

Here are 8 things we need to find our true voice:

1. Emotional safety: When emotional safety is present, we can feel and access our deeper sensations, emotions and thoughts. Emotional safety allows us to drop our defenses and dig deep into the root of who we are. When we are in touch with that deeper sense somatically and emotionally, voice, including words, follow.

2. Awareness that voice is a key capacity--something to find and have: Kids need to hear the message that voice is a critical capacity. Adult women and men need to be encouraged to find their voice and speak it out loud. Learning to find and use your voice is at least as important as learning to use a spreadsheet or read and write.

3. Patience: It takes time to find our voices and patience to be present with what is there. Patience creates spaciousness and relaxation which helps us feel our deeper thoughts and feelings.

4. Introspection: Learning to slow down, meditate, go inside, journal and reflect help us connect with our deeper self and what we really have to say.

5. A climate of non-judgment: When we judge ourselves or feel judged, we often censor our true feelings and thoughts. This leads to suppressing our true voice rather than expressing it.

6. Focusing on what you feel, not just what you think: Our deeper voice lies in the heart, including feelings, sensations and deeper experiences that the mind or brain may not be able to access.

7. Having permission to feel all your feelings, and embrace them as human: There are no "bad feelings" really. Anger, pain and fear are just as human as joy and happiness. If you suppress some of your feelings, including intense ones, it is hard to feel your wholeness as a human being.

8. Learning to trust your heart: Because our culture often lacks emotional safety, we often become afraid to listen and follow our hearts. It is actually the heart that helps us find our true voice and vision and therefore take meaningful action.

Music As A Personal Growth Pathway

I was very sad to learn of the recent passing of personal growth leader and inspirational writer and speaker Wayne Dyer. His work touched and impacted the lives of so many people. Tonight on Facebook I noticed a posting about a video featuring his daughter Selena, focusing on one of Wayne's 10 principles to live by: "don't die with the music still in you."

While Wayne used this language as a metaphor, there is a lot of literal meaning in the principle as well as symbolic meaning. The music that lives inside of us is a metaphor for our personal gift to give to the world, reflecting a sense of personal purpose. It can take many forms. But what matters is that we each find a pathway to full self-expression, which leads to a full contribution to the larger world.

For someone who is a musician, the full self-expression literally IS the music that is inside of them. And finding one's voice literally or playing the music that one feels and hears internally is the path of full self-expression and contribution to enrich the lives of others. Music is itself a powerful language, a heartfelt gift to give and receive, and a pathway from soul to soul that runs deeper than words.

While personal growth has always fueled my life and work, the process of embracing the depth of my identity of musician has led me to some of my richest, and sometimes most painful, growth. As a shy introvert, the last thing I ever wanted to do was stand on a stage and have people look at me and listen to me. The thought of "taking up space" and even "commanding attention" was a terrifying one. Yet, the music playing within me was not just a spark, but actually a soul-infused fire, that sought worldly expression as a pathway to connect with and touch others.

As a young person, I felt both the warmth of this passion, and the external squelching of my fire by other people, particularly my father, whose mantra was "music is a waste of a good mind." How does a young child reconcile an innate passion with a message from a parent that this passion is bad or wasteful? My response was to feel shame--shame that I felt so passionately, and shame that what I felt so passionately about was judged as wrong.

The threads of both passion and shame extended through many chapters of my life. The passion kept driving me to embrace music in different ways and to different degrees at many life junctures. The shame limited how far I could embrace my passion, and limited my vision of what I could allow myself to do. Yes, I needed to make enough money to support myself and my son. Yes, it felt quite vulnerable to expose myself vocally and musically, and yes, others can be really judgmental in ways that hurt when one exposes ones soul. Yet a creative force, that music that lived and lives inside of me, sought the space to emerge, to create, to connect. And without growing into a person who could transform the shame and nurture the fires of passion, ironically, that would feel like the waste of my life that my father chanted on and on about.

I learned vocal technique very young, but doing the heart work that truly freed my voice, could not be reduced to a series of vocal training skills. Moving into the world of cabaret, where the unique interpretation of a beloved song, and the theatrical skills to paint the picture of the song for the audience, has forced me to not only step beyond my comfort zone, but more so to face and embrace my discomfort zone. Growing into a person who can truly have my voice and share it, has required not only fabulous coaching, but also great courage to grow, heal and transform.

In this case, the gain is well worth the pain. Music is a magical crucible that transforms, and for me, it has allowed pain to be transformed into joy. I am deeply touched by musicians who truly inhabit their songs and for whom musical instruments are an extension of their souls, and literal soul voice. When we let our music out, we fertilize soul seeds, and touch hearts, and help bridge even the deepest divides. Music is magic. And to follow the path it asks of us, is to engage in a life of profound growth and enrichment.